Tag: tubie

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Healing After Having a G-Tube

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Disclaimer: I am not a doctor or nurse. All of the information in this post is based on my own experience with my son.

My 16-month-old got a g-tube placed at 5 weeks old. It was scary and unknown, but we got used to it. It even started to seem strange that other babies didn’t have feeding tubes.

He was able to slowly take more and more food by mouth and after the worries of winter illnesses, he got his g-tube button out in April. After 13 months of dealing with leakage, granulation tissue, emergency replacement kits, tubes, feeding pumps, feeding pump bags, and worrying the button would be pulled out, it was gone.  Continue reading “Healing After Having a G-Tube”

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G-Tube Mistakes

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I was a little overwhelmed taking my son home from the hospital four days after his G-Tube was placed. Not only was I worried about taking care of the tube site and feeding him with a pump, but he was 5 weeks old, less than 6 pounds, and had spent his whole life in the NICU.

I was bound to make a few mistakes. Here are just a few that maybe someone can learn from:

Continue reading “G-Tube Mistakes”

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Babywearing with a G-Tube

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I looked forward to being able to babywear #2. I hadn’t really cared to wear my first and later wished he’d gotten used to it. You know, it’s hard to cook dinner with a 20 pound toddler who insists on being held on your hip grabbing everything!

When a 39-day NICU stay ended in my baby being able to come home fed only through his g-tube, I was worried I wouldn’t be able to wear him. I didn’t know how I would be able to do anything with a toddler and a tiny baby who needed so much extra attention. I asked the NICU nurses if I could wear him. They had no idea what I was talking about, but they said that if it was like tummy time and put pressure on his stomach, it should be avoided. Continue reading “Babywearing with a G-Tube”